Today is the last part of my journey with fibromyalgia, thank you for bearing with me.
I know that some of what I have written about the state of the Medical Profession here in Ireland is controversial but what I have written is true. I do understand the limitations of G.P.’s, the pressures of huge workloads put onto Specialists and the economic disaster in Ireland. Truly I empathize with the whole, sad situation and pray for all of them.
Yesterday I wrote about the waiting 3 and a half years to see a Rhuematologist with still no result. I went to the Citizen’s Information on a different matter, whilst there I picked up a leaflet containing information regarding Medical Services. It stated that if an illness has deteriorated through negligence then there may be entitlement to treatment and compensation.
Three and a half years ago I was not on morphine, housebound and hobbling around with a stick, neither was I heading for a wheelchair. So I have decided to take my case up with the Ombudsman (I will keep you posted!)
At this point I need to thank the public health nurses who are the only ones who have shown me compassion and of course my partner – for everything.
So back to my reason for telling my story. I was asked how do I cope and manage my chronic pain?
The truth is, for me a healthy, spiritual attitude and practice,I try and pray for others who are suffering and of course my Art, helps me cope.
Mostly I think “What is the alternative?”
I have to accept my limitations, break each day into segments, do things slowly, and rest. I have to accept the days, perhaps weeks when I am totally helpless.
All this said, some days I am suicidal, depressed, angry, frustrated, difficult to be around and generally a pain in the backside. I’m human.
Thank you to everyone who has taken the time read, even like, comment on and share my blog. I hope it helps someone, it has helped me.
Go raibh maith agat